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Biosketch: Dr. Niclas Hagen

Born 1970 in Stockholm, Sweden and resident, since the late 1990: s, in Lund. I have done undergraduate studies at Lund University in genetics/molecular biology, as well as in sociology and political science in which I hold a masters degree. During 2009 I commenced my PhD studies in ethnology, working within the Basal Ganglia Disorders Linnaean Consortium (http://www.med.lu.se/bagadilico). My general research interest concerns the social and cultural aspects of science, particularly in relation to the biomedical sciences. As a scientific "hybrid", which has experience from the natural, social and cultural sciences, I also have a strong interest in various theoretical and practical aspects of interdisciplinary science.

In 2013, I defended my Ph.D. thesis 'Modern Genes - Body, Rationality, and Ambivalence'. The main objective of the thesis was to investigate the linkage between everyday life with a genetic disease and intrinsic patterns of modernity. The thesis is a compilation thesis that contains four individual articles each addressing the everyday experience of a genetic disease from different angles, with different research questions and theoretical presumptions. Each of the four articles has performed ethnographic investigations, mainly through semi-structured interviews, with individuals who in various ways are affected by Huntington’s disease, which is a genetic brain disease.

Current research activities

Since 2013, I am working in the interdisciplinary project Treatments for the Future - RNA editing for treatment of Huntington's disease, which is collaboration between medical researchers and researchers working within cultural sciences at Lund University. The medical side of the project aims at developing new treatments for Huntington’s disease, whereas the cultural scientific side of the project investigates the involvement and participation of patients in medical research.

I am also part of the multidisciplinary project Taking science to the crowd: Researchers, programmers and volunteer contributors transforming science online that will start in July 2014. The aim of the project is contribute to our understanding of how digital technologies are transforming the production of scientific knowledge as a consequence of scientists enlisting crowds of volunteers to contribute to scientific projects involving big data.

My third project concerns the political, social and cultural implications of mobile technologies for quantifying the body. Since 2013, I am part of the research initiative Living Through The Quantified Body: Reconfiguring relations of the political, cultural and material in app-based health.


Scientific publications (peer-reviewed)

Hagen, N. (2013) 'Modern Genes – Body, Rationality and Ambivalence. Lund: Lund Studies in Arts and Cultural Sciences 2.

Hagen, N. (2013) ’The Cultural Paradox of Predictive Genetic Testing for Huntington’s Disease, Ethnologia Europaea, 43(1), 55-67.

Hagen, N. (2012). 'A molecular body in a digital society. From practical biosociality to online biosociality', in S. Lundin, M. Liljefors, A. Wiszmeg (eds) The Atomized Body. Lund: Nordic Academic Press.

Hagen, N. Lundin, S., O’Dell, T., Petersén, Å. (2012). 'For Better or for Worse: Lifeworld, System and Family Caregiving for a Chronic Genetic Disease', Culture Unbound, 4, 537-557. doi:10.3384/cu.2000.1525.124537

Wiszmeg, A., Lundin, S., Torkelson, E., Hagen, N., Lundberg, C. (2012). 'Difficult Questions and Ambivalent Answers on Genetic Testing', Culture Unbound, 4, 463-480. doi:10.3384/cu.2000.1525.124463

Hagen, N., Hedlund, M., Mulinari, S., Lundin, S., Kristoffersson, U. (2012). 'Genetics and democracy - what is the issue?', Journal of Community Genetics, doi: 10.1007/s12687-012-0109-x.

Other academic publications

Hedlund, M., Hagen, N., Kristoffersson, U. (2012) 'Editorial: Genetics and Democracy', Journal of Community Genetics, 3(2): 57-59.

Public media

Hanson, K., Hagen, N. (2010). 'DNA-tester väcker svåra frågor som kräver svar’, Svenska Dagbladet, 101020, s. 5.


Niclas Hagen


Page Manager: Elin Johansson|Last update: 4/29/2014

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